Epilepsy can impact everyday life; needs support and acceptance
22 November 2019, Pune- Life is never a bed of roses for anyone, it comes with its own set of tricks and treats. But for those who are challenged by health ,life becomes more of a hardship. It becomes an everyday challenge especially for those who do not receive adequate social acceptance and support due to their medical suffering. Such a situation is usually experienced by those who suffer from epilepsy -a disorder in which brain generates sudden abnormal bursts of electrical energy that even affect other brain functions and lead to recurrent unprovoked seizures. When a brief, strong surge of electrical activity affects either a part of the brain or the entire brain, a seizure occurs and when these seizures happen two or more times it is usually considered as the case of epilepsy.
Epilepsy can arise due to changes in the brain’s wiring, abnormal development, or chemical imbalance. The exact cause of epilepsy has not been deciphered but doctors believe it can initiate after an illness or damage to the brain. Epilepsy disturbs the activity of brain cells called neurons that are responsible for transmitting messages in the form of electrical impulses. When these impulses are interrupted, seizures occur.
Epilepsy has several kinds and so do the types of seizures. While some seizures are relatively harmless, others can even be life-threatening. Since epilepsy is a brain disruptor, it can affect almost every part of the body. Since the seizures in epilepsy are so unpredictable, they certainly have an impact on your lifestyle as well. For some people, the impact might be minor but for others, larger lifestyle changes might be required. Hence it becomes important for the patient as well as his/her family to understand epilepsy in individuality. Lifestyle changes can range from altering the mode of transport to adapting a new job role or living habits that are more suitable for the patient’s individual health.
A seizure can at times be linked to certain situations and activities or circumstances that work as seizure triggers. The triggers can again vary from person to person and are only evident over a period of time. Some of these include:
• Lack of sleep
• Overexertion or physical fatigue
• Physical or emotional stress
• Hot and humid environment
• Alcohol and other drug use
People suffering from epilepsy often have low quality of life as as reduced mobility, impact on learning, relationships, employment, social interactions, and school attendance.
The challenges that living with epilepsy brings along affect children, adolescents, seniors, and adults in varied manners. And for betterment, it is crucial to be observant about your personal symptoms, triggers, and treatments.
A seizure can also turn out to be a reason for serious accidents while driving (if the driver has epilepsy) and prove dangerous for the driver as well as those accompanying him/her and for those around. People with epilepsy have strong chances of experiencing mood disorders, anxiety, and depression which can be last long or for short intervals and be recurrent further affecting the person’s ability to function.
Some of the things that a person with epilepsy can keep in mind include:
• For better physical and psychological health outcomes, being active and exercising regularly is extremely important. Hence people with epilepsy are encouraged to take part in safe low velocity sports activities.
• Knowing about one’s epilepsy, the possible triggers and being prepared for the seizures in consultation with one’s doctor is very critical especially before traveling.
• Anti-epileptic medications are not the best companions of alcohol as these medications can increase the effects of alcohol and make the person feel intoxicated sooner. Alcohol also tends to reduce the effectiveness of these medications.
• Practicing personal stress-releasing activities is also important for people with epilepsy as stress has been reported as one of the major triggers.
• Epileptic people also face challenges and fear with their relationships. People close to those who are suffering from epilepsy need to ensure that the patient does not feel isolated, be supportive and understanding.
• It is a must to speak to the neurologist if a person has epilepsy and is planning pregnancy.
• Cover the floors of the house in a dense pile carpet to avoid falling injuries. Do a walk-through of the rooms and look out for potential dangers and sharp corners, slippery surfaces and hot places or staircases and make necessary arrangements. Also make the walkways obstacles-free.
Dr. Kishor Rao, Consultant Neurosurgeon, Functional Neurosurgery and Spine Surgeon, Columbia Asia Hospital Sarjapur Road