Aditya Birla Hospital performs a rare cardiac surgery for the first time in Pune, saved the life of a 15-year-old boy
19th January, Tuesday, Pune: “Gyaneshwar was not only suffering from Myasthenia graves which is a neuromuscular disease that leads to muscle weakness and fatigue but he was also diagnosed with a very rare disease called Kearns Sayre Syndrome at Aditya Birla Hospital. The prevalence of this syndrome is approximately 1-3 in 1,00,000 people. It is a rare neuromuscular disorder, which leads to heart diseases such as heart block, progressive paralysis of eye muscles and abnormal accumulation of colored material on nerve rich membrane lining the eyes leading to chronic inflammation, progressive degeneration and wearing away of certain eye structures. This disease also leads to muscle weakness, short stature, hearing loss and other problems related to movements as it affects part of the brain”,explained Dr. Rajesh Badani, Senior Consultant Cardiology and Electrophysiology, Aditya Birla Memorial Hospital.
He was speaking at the Press Conference in Aditya Birla Hospital to discuss the rare cardiac surgery of a 15-year-old Gyaneshwar. Ms. Rekha Dubey, CEO, Aditya Birla Hospital, the patient Gyansehwar and his father actively participated in the Press conference.
15 year old Gyaneshwar was suffering from Myasthenia graves and was complaining of giddiness and black outs when he was referred to Aditya Birla Memorial Hospital. He was admitted to the hospital for a pacemaker implantation. “On thorough examination in our advanced pediatrician department, it was diagnosed that he also had another genetic disorder called Kearns Sayre Syndrome. A regular pacemaker would not be effective in his case; hence we decided to go ahead with MRI compatible dual chamber pacemaker implantation. This is the first implantation of this pacemaker in Pune in a young boy of 15 years”, shared Dr. Rajesh Badani. “This was a complex surgery and we are glad that his life could be saved”, he further added.
“Our young boy use to feel weak all the time and complain of giddiness. We are very happy and thankful to Aditya Birla Hospital for not only saving his life but also diagnosing the right problem and treating him appropriately”, shared Gyaneshwar’s father.
“We are glad that the advance facilities and trained team of doctors at Aditya Birla could save the life of this 15 year old young boy. It’s very important that correct diagnosis is done, otherwise people end up spending money and do not get proper treatment”, shared Ms. RekhaDubey, CEO Aditya Birla Memorial Hospital.“We at Aditya Birla Hospital strive to provide the highest level of patient care. We innovate and keep adding advance technology, equipment and hire the best doctors to ensure that our patients receive best quality services at affordable price. I am glad that Gyaneshwar is fine now”, she further added.
