Bhosari, 2nd August 2021: Vedika Shinde, the 13-months-old girl who was diagnosed with the rare disease spinal muscular atrophy (SMA), died at a hospital on Sunday. People had pooled in Rs 16 crore for an injection that was imported from the USA and administered to Vedika, a resident of Bhosari, about one and half months ago.
Vedika suddenly stopped breathing while playing in the evening on August 1. She was admitted to a nearby hospital and from there she was taken to Deenanath Mangeshkar Hospital but died during treatment there.
Spinal muscular atrophy is a genetic disorder. Her parents were devastated when they learned that their daughter was detected with the disease. However, they did not give up and decided to raise money for the treatment of Vedika. They collected Rs 16 crore through crowdfunding and got the injection Zolgensma. But even after that, the disease took Vedika’s life.
Her father said that when Vedika was four months old, she was unable to hold her neck. She used to fall sideways and was not able to hold herself upright. Doctors diagnosed it as a rare genetic disorder that would lead to degeneration of her body muscles, causing them to fail before she turns two.Follow Punekar News: